Future Transitions in Palliative Care

care across the lifecourse for people with life-limiting conditions

 

Background

Funded by the Scottish Universities Insight Institute (www.scottishinsight.ac.uk), the programme explores the future of palliative care for people with life limiting conditions to build a contextual understanding of care needs and aspirations across the life course and scope future care models that support the development of person-centred care towards Scotland 2030. There is a need to focus on positive and preferable destinations of care where the ethos and values of services provide a seamless transition for people with life limiting conditions, regardless of life stage. 

Transitions of care are not simply focussed on the person receiving care but also the wider care circles, such as family, friends, volunteers, practitioners delivering care, as well as policy and decision makers who impact the care experience. As such, the programme will draw the existing active network of cross sector organisations, practitioners, families and people with lived experience of services together, ensuring all voices are heard.

The programme is a multi-institutional collaboration led by The Glasgow School of Art and the University of Dundee. For more information on the programme team members visit the Scottish Universities Insight Institute website:

https://www.scottishinsight.ac.uk/Programmes/Scotland2030/PalliativeCare.aspx

The programme provides a way to build the foundations for innovation in palliative care pathways for people with life limiting conditions at the ‘front line’ at points of transition to set the direction towards 2030. Our approach is underpinned by the need to develop innovations based on the ‘right’ conditions and principles by placing interactions between people and their care circle at the core of care delivery to enable conversations that are centred around aspirations for care and thus contribute to seamless transitions for people of all ages.

 

Programme aims

Bringing together a multidisciplinary team, and directly involving people with life limiting conditions and their families and carers, this programme aims to explore and understand the care context and needs during particular life stages and transitions towards achieving person-centred care through designing preferable future scenarios that create sustainability for communities and improve quality of life. The key objectives of the programme are:

  • To provide a platform to bring forth the lived experiences of people with life limiting conditions and those who have been impacted by life limiting conditions, alongside other views and experiences to inform what meaningful care should be.
  • To facilitate knowledge exchange among academics, health and social care professionals, education and third sector practitioners, volunteers, and policy and decision makers, with a view to provide person-centred palliative care across the lifespan.
  • To consolidate the insights generated through creative engagement across the interactive seminars to identify research, practice and policy priorities for future needs across the life course for people with life limiting conditions and their families.

 

 

Our Approach

Employing the Flourish process (McAra-MCWilliam et al., 2014), ‘Future Transitions in Palliative Care’ entails a series of creative engagements to bring together the programme team, participants and other external partners towards sharing knowledge around transitions of care for people with life limiting conditions and their ideas for future care transitions for Scotland 2030. As an inclusive platform for knowledge exchange and idea generation, a diverse range of voices characterise each activity. 

The programme involves a series of creative events that provide a space to share research evidence (Seminar 01), experiences from people with life limiting conditions, and from their wider circles of care including family, volunteers and practitioners (Flurry 01); and will also facilitate knowledge exchange by bringing these stakeholders together with policymakers, to identify key policy and practice priorities for meaningful future palliative care needs across the life course (Co-design Workshop). 

 

emerging FINDINGS

Creative Seminar: Understanding the Context

In our first creative event we explored the understanding of transitions in palliative care for people with life limiting conditions by unpacking current research, practice and care policy with participants. This seminar involved participation of academics currently engaged in research on palliative and EoL care and transitions, practitioners, and policy leads and advisors.

You can download a copy of the seminar programme here.

 

'Flurry': Lived Experiences of Transitions

Using visual design storytelling we supported people living with life limiting conditions and their families to share their experiences of care and transitions. Using the analogy of open and closed doors, magic potions and rainbows, people shared their challenges, stories of what works well and their aspirations for future transitions.

LivedExperienceTransitions.jpg

Co-Analysis of the rich outputs generated to date by the programme team led to the emergence of several key themes which will be explored during the co-design workshop. 

Six key themes were developed into co-design briefs which can be downloaded here.

 

 

Co-design workshop

*The workshop is due to be held on Tuesday 4th September at The Lighthouse, Glasgow*

Focusing on knowledge exchange and best practice of care to support transitions for people with life limiting conditions, participants will be creatively engaged in an immersive co-design session and supported to work together to respond to emerging themes towards co-designing future transitions in palliative care across the life course. The workshop aims to bring together people involved in palliative care (people with lived experience, practitioners, volunteers, families, carers, researchers, policy makers, students, and others) to work together to develop ideas for how transitions in palliative care can happen in the future. 

You can download a copy of the workshop programme here.

 

Outcomes

The programme team will work towards consolidating the insights and knowledge gathered throughout the programme towards identifying key policy, practice and research priorities for future care needs and aspirations across the life course during periods of transition for people with life limiting conditions. Priorities will be road mapped to form an action plan for impact to ensure the outputs of the programme are taken forward by the appropriate stakeholders. 

 

further information

For more information contact:

Dr Tara French | t.french@gsa.ac.uk 

Sneha Raman | s.raman@gsa.ac.uk